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Julieta Echeverria (23) was the carer for her uncle Nelson until he died in August 2022 as a consequence of Huntington's disease. Julieta says that from the age of seven she began to hear about the disease that her family suffered from. On several occasions, she says, she has felt discrimination just for having the last name Echeverría.
Charlie Cordero/Panos Pictures /Felix Features 5 Jun 2022